//
//
The refined long list of outcomes

The refined long list of outcomes

21 October 2022
comfa-news

Dear All,

We would like to thank everyone who have provided their feedback to the list of outcomes we circulated a week ago! Very grateful for your kind involvement, for finding time to comment.

We would like to remind you that if you have not submitted your reimbursement for the Porto meeting please do not forget to claim it via ‘e-cost’. If you have any queries please do not hesitate to contact us.

your comments and email communication, the long list of outcomes to be used later in a Delphi process to define the Core Outcome Set (COS) for food allergy was refined.

You may find the refined list of outcomes with descriptions here. Changes are highlighted in blue.

We would be most grateful if you could kindly let us know of any further changes to the outcomes and descriptions.

We welcome your suggestions with regards to the outcome and descriptions refinement within the next few weeks to reach the final list to be used in the Delphi process.

Please provide us with your feedback regarding the following matters:
(a) Are there any outcomes that should be added to the list?

(b) Do you have any suggestions with regards to the outcome descriptions?
(Please do not forget that descriptions should be outlined in a “plain language” so can be easily understood by people with lived experience of food allergy and their carers)

(c) Are there any outcomes which were added inappropriately to the list?

Just replace the “reviewer” tag at the top of the column with your name and provide your feedback.
We will be looking forward to hear back from you by the end of the next week (28th October 2022) midnight UK time.

We will review the feedback and are aiming to hold an online discussion on the 4th of November during C3 meeting.

As we have a wide geographical representation, two time slots may be required for the meeting for your confidence. The preliminary time slots for the 4th November are the following: (a) 10.15 – 12.15 (UK time) and (b) 16.15 – 18.15 (UK time) and hope that many of you will be able to join. We will keep you updated and cofirm the times early next week.

Latest News

comfa-news
Title
"C3 Meeting" time change 
25 October 2022

Preview

We would still like to hold a meeting with those of you able to join and discuss the current itteration of the list of outcomes on the 4th of November during C3 meeting as some of us will be joining C3 anyway. The meeting will take place between 18.00 and 19.15 (UK time) on the 4th of November.
maxresdefault
Title
Important guidance
14 October 2022

Preview

Some important tips related to COS development. The concept is very straightforward, however, certain aspects may be unclear, somehow confusing and you may find information below useful. (a) It is very important to distinguish between “what to measure?” and “how to measure?”: The first step in the COS development is to undertake a Delphi on...
PHOTO-2022-10-14-12-57-21_1
Title
The long list of outcomes
14 October 2022

Preview

We would like to thank everyone who have participated in COMFA Annual Meeting 2022! Very grateful for your kind involvement, for finding time to come to Porto in person and for spending countless hours in front of your computers, which is very burdensome as all of us know. Thank you for great presentations, which all covered very...